17 September 2014

The London 10K Run

With the new academic year the teachers, and others, among our runners have now sent in their sent their sponsorship money and we are delighted to say that the total amount raised is now £9000! Thank you all for your hard work, not only in running but in collecting in the donations!
Your donations help Brighter to care for HIV/AIDS children and adults in our Hospice. Children like Vijaya and Nilaveni. 
Sadly we have to report that  Vyjaya, died this week. Vijaya came to our Prem Nivas home in June 2010 and was a high school student before she became so very ill and was transferred to our hospice.  

Vijaya and Nilaveni have both died this year.

12 September 2014

Poor patients in India facing HIV/AIDS drug shortages

Read the report from Reuters and MSF 
http://in.reuters.com/article/2014/09/04/india-pharmaceuticals-aids-idINKBN0GZ0L120140904
Follow this link to take you to the Reuters report detailing reasons and excuses for the shortages of adult and children HIV drugs and general information about HIV in India

11 September 2014

A company donates school bags to the children of DMC House.


A lovely Indian custom

It is  a custom in India to mark the anniversay of a death by hosting a meal to which friends, neighbours and relatives of the decesed are invited. To my knowledge this custom is kept by Hindus and Christians and probably by all religious groups. My friends in Bihar invite all the men and children of their village  on the death anniversary of their father. Some of the men are also given a small vessel filled with uncooked rice, a silver coin and a new scarf/towel. The deceased is honoured and the giver receives blessings.

In Andhra Pradesh there are several citizens who offer a free meal to the children of our homes for the same purpose. The Gajapatinagaram station master always remembers his father by giving a special meal to the Prem Nivas children.

Others provide breakfasts. sweets, biscuits and cake to mark their child's birthday and, as is the custom. actually serve our children with these foodstuffs.They bring thier birthday child to our children to distribute the gifts.(Remember that our prem Nivas are HIV infected children)




This little girl's parents brought her to give birthday cake and sweets to our Prem Nivas Children.










One of the Brighter Future trustees, an Indian gentleman, contacted Victor yesterday to ask him to give food parcels, like the ones we provide to HIV mothers to supplement their incomes, to 100 poor people on his father's death anniversary, and again on 21st September. He provided £500 for these food parcels.
  

   

08 September 2014

ART medicine NOW available !

News from Victor - Supplies of the ART drugs for the weakest HIV children resumed at the government treatment centre in Vizianagaram two days ago.

28 August 2014

HIV children not getting medicine

When children, and adults, have a lot of the HIV virus in their system, measured by testing their blood, they are given special anti-viral drug treatment. There is as yet, despite recent claims in the press, no cure for HIV. The antiviral drugs, known collectively as ART, slow down the progression of HIV and delay the progression of the disease, through five identified stages, to the final stage of AIDS.

The threshold at which both children and adults start ART is debated by scientists but it is generally agreed by WHO (The World Health Organisation) that ART should be started when the  blood CD4 count is close to, or falls below, 350. However many HIV specialsits recommend treatment should begin at 500.
(CD4 cells are part of the body's infection fighting system).

95% of HIV is found in Low and Middle - income countries. India counts as a Middle income country. The Indian Government provides free ART treatment to those who register at its HIV/ART testing centres. Patients  have to take themselves to the testing centres in the large towns for a blood test  and register if proved positive. They have to go to the centre every month to collect ART medicines and every three to six months to have new blood tests.

In the poor agricultural area where Brighter Future works many of our patients cannot afford the bus fares to go to collect thier medicines. Many are widows and do not know that they and their children  have been infected by their husbands, or at birth. This is why our Project, which actively seeks out those who may have HIV/AIDS by surveying villages in Srikakulam District, is so important.  Brighter Future has found 626 patients and taken them to be tested.

When I left India in February 2014 the poorest HIV infected people, to whom we give food parcels, (see the Finding and Feeding tab) told me that the government centres were only giving ART medicines for 10 days.  Patients were asked to come back every 10 days as there was a  shortage of medicine. This imposed a huge physical and financial burden, on these weak and mainly unemployed widows. The ladies also said that patients were not being given ART until their blood count had fallen to 200 - until they were more sick and symptomatic. In Vizianagaram district some of our the children had to be below 350 to start treatment.

Now Victor has written to say that our children have not had any ART medicine for the last 12 days. ART medicine for the under 12's is not available in Andhra Pradesh. It is rumoured to be avail able at the end of the month.

It is risky to stop  ART treatment. It can increase opportunistic infections like TB, lead to drug resistance, lower the CD4 count and increase viral load.

Until the ART is available our children are being given extra protein, and continue their vitamins, supplements and prophylaxis to ward off opportunistic infections.
People living with HIV globally
·        35.3 million people living with HIV worldwide
·        47% of people living with HIV worldwide are women
·        1.6 million AIDS-related deaths
New HIV cases around the globe in 2012
·        2.3 million people diagnosed with HIV
·        6,300 new HIV infections a day
·        260 000 new HIV infections among children 
·        95% are in low- and middle-income countries

All global figures from UNAIDS
Andhra Pradesh has the highest number of registered HIV cases in India. 
Many are still undiagnosed. 

04 August 2014

A heartfelt thankyou for raising over £6250!

Congratulations to all our 2014 London 10K runners who raised more than £6250 towards the running costs of our Hospice and its associated Finding and Feeding Programme. 

Thank you for the time you gave in preparation for the big day and for finding your supporters.

In 2013-4 our  Hospice  admitted  52 patients for nursing care ; 5  sadly died.
We gave 697 food and medicine parcels  to prevent starvation and found 45  people,including Nilaveni, who didn't know that they had HIV.