28 August 2014

HIV children not getting medicine

When children, and adults, have a lot of the HIV virus in their system, measured by testing their blood, they are given special anti-viral drug treatment. There is as yet, despite recent claims in the press, no cure for HIV. The antiviral drugs, known collectively as ART, slow down the progression of HIV and delay the progression of the disease, through five identified stages, to the final stage of AIDS.

The threshold at which both children and adults start ART is debated by scientists but it is generally agreed by WHO (The World Health Organisation) that ART should be started when the  blood CD4 count is close to, or falls below, 350. However many HIV specialsits recommend treatment should begin at 500.
(CD4 cells are part of the body's infection fighting system).

95% of HIV is found in Low and Middle - income countries. India counts as a Middle income country. The Indian Government provides free ART treatment to those who register at its HIV/ART testing centres. Patients  have to take themselves to the testing centres in the large towns for a blood test  and register if proved positive. They have to go to the centre every month to collect ART medicines and every three to six months to have new blood tests.

In the poor agricultural area where Brighter Future works many of our patients cannot afford the bus fares to go to collect thier medicines. Many are widows and do not know that they and their children  have been infected by their husbands, or at birth. This is why our Project, which actively seeks out those who may have HIV/AIDS by surveying villages in Srikakulam District, is so important.  Brighter Future has found 626 patients and taken them to be tested.

When I left India in February 2014 the poorest HIV infected people, to whom we give food parcels, (see the Finding and Feeding tab) told me that the government centres were only giving ART medicines for 10 days.  Patients were asked to come back every 10 days as there was a  shortage of medicine. This imposed a huge physical and financial burden, on these weak and mainly unemployed widows. The ladies also said that patients were not being given ART until their blood count had fallen to 200 - until they were more sick and symptomatic. In Vizianagaram district some of our the children had to be below 350 to start treatment.

Now Victor has written to say that our children have not had any ART medicine for the last 12 days. ART medicine for the under 12's is not available in Andhra Pradesh. It is rumoured to be avail able at the end of the month.

It is risky to stop  ART treatment. It can increase opportunistic infections like TB, lead to drug resistance, lower the CD4 count and increase viral load.

Until the ART is available our children are being given extra protein, and continue their vitamins, supplements and prophylaxis to ward off opportunistic infections.
People living with HIV globally
·        35.3 million people living with HIV worldwide
·        47% of people living with HIV worldwide are women
·        1.6 million AIDS-related deaths
New HIV cases around the globe in 2012
·        2.3 million people diagnosed with HIV
·        6,300 new HIV infections a day
·        260 000 new HIV infections among children 
·        95% are in low- and middle-income countries

All global figures from UNAIDS
Andhra Pradesh has the highest number of registered HIV cases in India. 
Many are still undiagnosed. 

04 August 2014

A heartfelt thankyou for raising over £6250!

Congratulations to all our 2014 London 10K runners who raised more than £6250 towards the running costs of our Hospice and its associated Finding and Feeding Programme. 

Thank you for the time you gave in preparation for the big day and for finding your supporters.

In 2013-4 our  Hospice  admitted  52 patients for nursing care ; 5  sadly died.
We gave 697 food and medicine parcels  to prevent starvation and found 45  people,including Nilaveni, who didn't know that they had HIV.

02 August 2014

Brighter Future was 10 years old in June!

Brighter Future was set up by Victor and his brother Danny in 2004 to enable the stigmatised children from leprosy colonies, and other disadvantaged children, to be given the benefit of an education in an  environment that also provided them with medical care and the opportunity to live as normal children.
They can face a future as independent citizens, with educational and vocational opportunities and eshrew the cycle of poverty and begging which their parents were forced to adopt.

HAPPY BIRTHDAY BRIGHTER FUTURE!

These photos were taken on the same day. Samson is learning to use a computer at the Rainbow Home .
His parents are hoping that they will soon get one of the new houses that Brighter Future is building,



15 July 2014

A big thank you to all of our 10K runners!

We are so grateful to those who did the London 10K for Brighter Future last Sunday. Giving their time to train, asking for donations and turning out, many of them for the first time, to join thousands of like-minded charity fundraisers. and run 7 miles through the streets of London.

Anjali has run every Brighter Future 10K, all 5 of them, traveling down from Manchester for the event.
Lucy came by bus from Shipley in Yorkshire and she has done 4 for us!

Mikaela did the run to keep a promise made to her aunt, Sue Davies, two years ago.

Pascal was pacemaker for Danny
Carl, Tom, Fani, David and Danny are now old hands at the run.

Rahul found Brighter Future on the race website and registered 30 minutes before registration closed.

So many wonderful people!
Faye's friends ran for us

 By Monday morning £3674 had already been collected by the runners using our Justgiving pages!! By 16th July this was £4836 including the gift aid! Great Team!!!!
When I looked at the Brighter Future Justgiving page on Monday 21st our wonderful runners had passed £6000 !!


08 July 2014

Cards and Crafts

Karen and I have been making our cards again. General ones this time, including thank you, thinking of you as well as happy birthday.




 We were allowed to sell them before and after all the services at my church. Besides cards there were key rings and bag charms, bracelets of glass beads, corsages of various kinds, retro beaded and crocheted jug covers and handmade geese.
We found two other sales opportunities and are able to report a total of £444 for our efforts.This money will be put towards the college fees of Rambabu (see previous blogpost) and towards any of the other students who still need funding or topping up.
Now I can get my kitchen table back to normal but the utility room is still stacked high with things for yet another car boot sale !! The last one netted £70.

03 July 2014

LET LOOSE WITH 300 irp!

After the 10th and Sandeep's 10+2 exam successes Victor let the boys go to Visakhapatnam on their own. Sandeep had been last year with Anjali so he knew his way around. They were given 300rupees (about £3each) for the bus fares and whatever they wanted to spend the money on. I bet they felt really grown up!  They took these photos of themselves on the town beach.
Ramesh, Sanyasi,Sandeep,Anil and Isaak
Ramesh
Sanyasi, Anil, Ramesh and Isaak


17 June 2014

NEWSFLASH!

Victor says it is so very hot. He can't remember it being so hot in the last 5 years.The children have to stay indoors and cant go ourside until 5pm. I assume school is cancelled as this normal in very hot weather.
Victor says that 45 people have died of heat stroke in Vizianagaram district.

The children will be given special dehydrating fluid drinks every hour.
                             The first mangoes are ready at Shanti Nivas!